Care Partner - MSA Trust
Ian is the husband and very willing full-time carer of Jackie who has MSA-C.They are not quite having the retirement they planned but love spending time together and have travelled extensively before and after the diagnosis. They do as much as they can in their circumstances and they are both convinced that they will continue to be positive whatever the beast of MSA throws at them! They live in the UK and have been well supported by their NHS, the local hospice and the MSA Trust. They facilitate a support group for four counties within UK and have monthly Zoom meetings where an interesting speaker talks each month followed by round table discussions on whatever topic is relevant to their members.